First of all, the really good news. My laptop is ready to come home. Apparently she made it through the transplant surgery and is as good as new (so the Geniuses say). Tomorrow hubby will be off to the land of expensive real estate, fur coats, and designer clothing (Bethesda) to pick her up. Hopefully this is the end of her ailments, and she will live to a ripe old age at my side...er...front...lap?
Second, I finally got an appointment* at the Chiari Institute in Great Neck, NY, for January 25-26. Now is when I start sweating bullets about the cost; you see, not only will I have to pay for transportation up (Amtrak, in my case) and hotel, but I will also have to shell out ~$500 that day. Most of that will not be reimbursed by my insurance. Then the tests (done on day one) will be ~$1000 or more. Yikes! Not to mention, if they want to operate on my brain... There are out-of-pocket caps on my insurance, thankfully, but this will still hurt in more ways than one.
There is much to be thankful about this Thanksgiving. I plan to post a list of those things on Thursday, but just for starters? My laptop will be home tomorrow, and I'm going to get my head examined by the very best doctors in the country for my condition. For those of you who thought I needed to have my head examined, you'll be glad to hear it.
And now? Back to your regularly scheduled program....Peace - D
*For those who haven't been following my blog for very long, I have a congenital condition in my skull known as Chiari Malformation Type I in which the bony area at the base of my skull is malformed and causes crowding of the lower brain structures. The number one symptom I have is pain -- really bad pain. I also sometimes lose feeling in the left half of my body, have balance problems (particularly bad in cold weather), and have central sleep apnea, in which I simply stop breathing many times every night (up to 18 times an hour). To top it off, they think I also have a concurrent condition - tethered cord syndrome - in which the bottom of my spinal cord is abnormally attached to my spinal column (whereas it should be free floating). That is a whole 'nother surgery. All of this is going to be examined and evaluated when I go to NYC. One of the things for which I'm most grateful this year is the group of local people I've met who have this condition, many of whom have already gone through brain surgery. If I have to do the same, they will be instrumental in kicking my butt and getting me to go through with it.