You know how I've gone back and forth with doctors for the last few years about these neurological problems? I've lost track what round this is, but there is now a symptom they can't ignore.
My diagnostic test at the urologist this morning was pretty conclusive that my nerves are not getting a signal to my muscles. The nerve function on my bladder itself was a flat line. My abdominal muscles contract but my bladder muscles don't contract. The nerves also don't tell me that I need to go. So now instead of catheterizing three times a day, I need to do it more often. If I like drinking the amount of water I drink, I have to cath about five times a day to prevent my bladder from getting any more stretched out than it already is. It's not great news, but it is a way to keep myself healthier. I've had fewer fevers since starting this routine, so my body is happier that I'm doing this.
My urologist told me to go see my neurologist before I come back to see her for a follow-up. She said there are some options we may be able to explore, including a nerve stimulation implant, but that right now, she just wants me to be properly diagnosed and treated for the underlying problem, as she calls it.
We get up, we keep going, we keep smiling.
And I still am....
Peace - D